El dia de los Enduros

Discussion in 'Racing' started by Ricekrispyota, Sep 18, 2019.



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  1. Ricekrispyota

    Ricekrispyota Member

    Name:
    Dana Weinberg
    This will be an enduro-style fun ride with 4-5 stages. This year's ride will cover approximately 12 miles with approximately 2200 vertical feet of climbing and descending on some of the steepest and best trails along the coast of Southern Orange County!

    When the riding is finished, we'll supply the tacos and drinks, with the help of our friends at California Creationz, while you work to convince everyone how hard you ripped and how much faster you were than your riding buddies!

    https://www.ridefastracing.com/products/el-dia-de-los-enduros-donation

    I know a lot of you guys live in the OC area and this is for a good cause. My friends daughter lives with RETT syndrome (though he is not involved in this event) it requires full time care. For those that don't know:

    Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements. Rett syndrome is usually recognized in children between 6 to 18 months as they begin to miss developmental milestones or lose abilities they had gained. Rett syndrome is caused by mutations on the X chromosome on a gene called MECP2. There are more than 900 different mutations found on the MECP2 gene. Most of these mutations are found in eight different “hot spots.” Rett syndrome is not a degenerative disorder with individuals living to middle age or beyond. It is not inherited. Rett syndrome occurs worldwide in 1 of every 10,000 female births, and is even rarer in boys. Rett syndrome can present with a wide range of disability ranging from mild to severe. The course and severity of Rett syndrome is determined by the location, type and severity of the mutation and X-inactivation.

    Symptoms May Include
    • Loss of speech
    • Loss of purposeful use of hands
    • Involuntary hand movements such as handwashing
    • Loss of mobility or gait disturbances
    • Loss of muscle tone
    • Seizures or Rett “episodes”
    • Scoliosis
    • Breathing issues
    • Sleep disturbances
    • Slowed rate of growth for head, feet and hands
    So if ya have some free time on your hands that day, ride and tacos for a good cause.

    Thanks
     
  2. herzalot

    herzalot iMTB Hooligan

    Location:
    Laguna Beach
    Name:
    Chris
    Current Bike:
    '20 Pivot Firebird 29
    Enduro...
    Southern Orange County...
    Rett Syndrome...
    Tacos and Beer...

    Sounds like a very positive and important event. I have a buddy whose daughter has Rett. Thanks for posting this. I won't compete, but I may find a way to join in.
     
  3. mike

    mike iMTB Hooligan

    Location:
    Western US
    Name:
    Mike O
    Current Bike:
    GG Smash
    Positivity bump. :)
     
    Luis and Ricekrispyota like this.
  4. Stubborn Approach

    Stubborn Approach Member

    Location:
    Irvine
    Name:
    Tony
    Current Bike:
    Santa Cruz Nomad 3
    I am signed up for this, looks like a good time and cause. Recovery from crash @ FUSO should put me back on the bike just in time for this. :whistling:
     
    Ricekrispyota, mike and DangerDirtyD like this.



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